Wednesday, 28 July 2010

The start of a big journey

Wow - what a 24 hours.

Even though we promised ourselves we wouldnt, we maintained a vigil of the gmail account. However, we called it a day at 10:30pm. If only we had waited 25 minutes, for at 10:55pm we received an email from the wonderful people at St Louis Children Hospital. Basically it said, "we feel that Evan is an excellent candidate for the rhizotomy surgery and that the permanent reduction in abnormal muscle tone will help him very significantly. " and "If he has the surgery we expect the following improvements: ~ (including) he will walk independently in protected environments and may need a cane in the outdoors and community.". Absolutely fantastic, overwhleming and truly, truly, life changing. 


When we told Evan his reaction was, "well - thats a bit mixxy - im very nervous but also excited" and "are we going today?"


Facebook, phones, blackberry and mobiles went into overdrive and work has been manic - but fabulously manic.


So, it starts now - we have a few plans and we need to get organised in terms of co-ordinating events. It's going to take a little while for the news to settle in and for us to get our heads round it. However, we will provide more details soon - then we will definitely need some helpers. From the messages we have received already, we know we are so lucky to have such a good supply to hand. 


Thanks for everything so far - it's going to be a long way so let's get going..... 

1 comment:

  1. Fantastic!
    Plans already being made.
    Video set to be in production next week.
    Lets go, go, go.

    ReplyDelete