As i'm sure some of you might be aware, we are investigating SDR (selective dorsal rhizotomy) - which in short is an op which will help Evan. I'll post more details later. Trouble is (1) it's not currently available in the uk (2) not everyone is able to benefit from this (3) its v.v.expensive and (4) you have to spend a month in the US.
Easy, eh !?
So I thought I would put this together as a repository for the various pieces of info that we start to collect and for his family, friends, fans and followers to keep in touch. More importantly (related to point 3 above) we are going to need a lot of help and support raising the approx £40k which is needed. That said, for those who have met Ev, I would hope you agree he is worth every penny (should that be cent?).
If anyone has any fund raising ideas, or has a Van Gogh up in the attic that they are fed up with - we will be in touch !
Thanks for listening. More later...